A Race Against Blindness

A Race Against Blindness: funding research for children's sight

A Race Against Blindness is a nonprofit organization that raises funds for research aimed at preserving the vision of children affected by inherited retinal diseases. Its stated mission is to cure retinitis pigmentosa caused by Bardet-Biedl syndrome (BBS), a rare genetic condition that causes childhood blindness.

The entity presents itself as tax-exempt under Section 501(c)(3) of the United States, with tax identification number EIN 92-2174042.

Origin and approach of the organization

The organization was born from the diagnosis of Luke, the founders' son, who has BBS1 and is progressively losing his vision. That personal case gave rise to an entity dedicated to finding a cure for BBS and the associated retinitis pigmentosa.

Its current goal is to advance therapies for pediatric inherited retinal diseases. Specifically, the organization is raising funds for a new gene therapy targeting RP/BBS1, a rare but devastating cause of childhood blindness.

Research and clinical trials

A Race Against Blindness funds clinical trials aimed at treating childhood blindness and states that its work supports the best research in retinitis pigmentosa with an impact on clinical trials. Its educational resources include sections on how clinical trials work, a grant portal for researchers, and a comprehensive IRD education hub.

The website also offers a condition database, resources for the newly diagnosed, and a community survey on RP/BBS.

Fundraising through giveaways

The organization structures its fundraising around charity giveaways in which participants can win prizes while supporting the mission. The site shows several active giveaways with closing dates:

• Final Chance Baja Truck: ends September 7, 2026. Prize: a Rossmönster Baja Adventure Truck plus $100,000 in cash.
• Ultimate Super Duty: ends August 23, 2026. Prize: a professionally upfit Ford F250 King Ranch Super Duty in Marsh Gray, plus $40,000 in cash.
• Mini Class A Thor + Bronco: ends August 30, 2026. Prize: a Thor Axis motorhome, a Bronco Badlands Sasquatch set up for flat towing, and $50,000 in cash.
• $150k Toyota Spree: ends October 18, 2026. Prize: a Toyota garage of the winner's choice.

The website indicates that the giveaway catalog may vary and that there are pages for past winners and a donor portal where entries can be checked.

Transparency and community resources

The entity publishes annual reports and maintains sections dedicated to who they are, what they do, sponsors, press, and grant funding updates. It also includes FAQs, privacy policy, terms of service, and an ADA accessibility statement.

The mailing address listed on the site is 3317 S Higley Rd Ste 114-110, Gilbert, AZ 85297, and the organization itself clarifies that this is a mailbox, not a physical office.

Location and contact

3317 S Higley Rd Ste 114-110, Gilbert, AZ 85297