Fundación Síndrome de West

Support for families affected by West syndrome

Fundación Síndrome de West is a nonprofit based in Torrelodones, Madrid, focused on West syndrome and related epilepsies. Its work has three main areas: public education, family support, and research.

Areas of work

• Public education: Raising awareness of epilepsy and related conditions and advocating for early detection and diagnosis.
• Family support: Providing a meeting place, information, and specialized services for families of children with West syndrome and related conditions.
• Research: Supporting pediatric neurology research and the search for new medications for patients whose conditions are drug-resistant.

Activities and events

The foundation organizes summer camps for children, cultural outings such as museum visits and nature activities, and charity sports events, including golf and paddle tennis tournaments. It also holds a recurring international congress; the 11th edition is planned for Madrid.

Partners

Fundación La Caixa and Fundación Asisa sponsor some of the foundation’s activities.

How to get involved

The foundation accepts donations, which qualify for a tax-deduction certificate, and offers membership and volunteer opportunities. It also sells a solidarity bracelet to support its work.

Contact

Address: c/ Hermanos Velasco López, 1 bis, 28250 Torrelodones, Madrid, Spain. Phone: +34 91 631 90 11. Emails: fundacion@sindromedewest.org and donativos@sindromedewest.org.