
Fundació MSD - Dèficit Múltiple de Sulfatasa
A nonprofit foundation supporting research into multiple sulfatase deficiency, a rare disease, and working to improve the quality of life of affected children and families.
About Fundació MSD - Dèficit Múltiple de Sulfatasa
Research and support for multiple sulfatase deficiency
Fundació MSD is a nonprofit organization focused on multiple sulfatase deficiency (MSD), a rare disease. The foundation says four organizations around the world work together to raise funds and advance research into the condition.
Mission and community
The foundation focuses on children affected by MSD and their families. Its work aims to support well-being and quality of life, fund research at specialized centers in different countries, and raise public awareness of the disease.
Events and activities
The organization holds sports and awareness events. These include Cursa de Muntanya Serralavella and Caminada Serralavella d'Ullastrell, which held their 11th and 4th editions, respectively, in 2024, with volunteers taking part. The foundation also sells its own items online, including the children’s book La Papallona Lila, with free shipping.
Transparency and donations
The website publishes a donation history and donor wall, along with information about contributions received. The foundation accepts one-time donations and recurring support and shares updates through a newsletter.
Contact
- Address: 116 Sant Marc Street, 08224 Terrassa, Barcelona.
- Phone: 675 90 72 04.
- Email: info@curamsd.org.
Multiple sulfatase deficiency research and family support