AESDE - Asociación Española de Disfonía Espasmódica

Information and support for spasmodic dysphonia

The Spanish Association for Spasmodic Dysphonia (AESDE) is a nonprofit focused on spasmodic dysphonia, a rare voice disorder that remains little known even among medical professionals. The association provides information for patients and healthcare professionals and serves as a meeting point and source of support for people affected by the condition.

Resources and outreach

• Guides to spasmodic dysphonia for patients and healthcare professionals, including English-language versions.
• Educational events, including the 14th World Spasmodic Dysphonia Day meeting held in El Puerto de Santa María, Cádiz, on September 19, 2019.
• Participation in rare-disease events, including programs at Puerta del Mar University Hospital in Cádiz.
• Awareness campaigns with the Spanish Federation of Rare Diseases (FEDER), including “Research Is Our Hope.”
• A YouTube channel with interviews and reports about the condition.
• Membership opportunities for people who want to support the association and access its services.

AESDE is based in El Puerto de Santa María, Cádiz. Its representatives have also taken part in radio outreach and visits to specialized centers, including the Celia Carrión Pérez de Tudela Multidisciplinary Center in Totana, Murcia.