Fundació Privada Catalana de l'Hemofília

Support for people with hemophilia

Fundació Privada Catalana de l'Hemofília is a patient-support foundation based in Barcelona. It was entered in the Government of Catalonia's Register of Private Foundations on November 22, 1991, and is classified as a charitable foundation providing social services. Its work focuses on hemophilia and the people and families affected by it.

Activities and services

The foundation organizes hemophilia update sessions, workshops for teenagers, in-person groups—including a group for grandparents—and recreational activities such as summer camps and ski weekends. It also offers counseling and lists a pairing program for 2026.

Publications and resources

• Magazines and newsletters published since 1981
• A guide for women who carry hemophilia, in Catalan and English
• The book “Infants amb hemofilia” and materials for schools and families
• A children's story about hemophilia illustrated by Pilarín Bayés, in Catalan and English
• A 40th-anniversary book
• Videos and documentaries, including “Unique like you”

Information for patients

The website brings together information about clotting factor, target levels, daily life and treatment, recording administered factor, risk-free insemination, and lists of hospitals that treat hemophilia in Catalonia and Europe. The foundation says its online information is intended to complement—not replace—the relationship between a health care professional and a patient.

Location and contact

Address: Via Laietana, 57, 1st floor, unit 1A, 08003 Barcelona. Phone: +34 93 301 40 44. Fax: +34 93 412 34 67.