Asociación Retina

What the association is

Asociación Retina is a non-profit providing information and guidance to people affected by macular and retinal conditions. It says no fee or registration is required and that enquiries are handled by email, normally within 24 hours.

Who it supports

Its work is aimed at people diagnosed with retinitis pigmentosa and other retinal conditions, including Stargardt disease, cone-rod dystrophy, diabetic retinopathy, retinal detachment, epiretinal membrane, macular hole and age-related macular degeneration. The association says its network includes people with expertise in these conditions.

Areas of work

• Information about major retinal diseases and their progression.
• Reporting scientific developments. Its source text says there is currently almost no cure but suggests one may be close; patients should rely on qualified clinicians and peer-reviewed evidence for treatment decisions.
• Individual legal guidance on work incapacity, reassessment, disability status and dependency.
• Information on economic rights and possible benefits or pensions related to illness.
• Referral to other Spanish retinal associations when different support is more appropriate.

Role in the patient community

The organization presents itself as an initial guide within Spain's network of retinal associations, helping people identify the group best suited to their condition and circumstances.

This is an information and referral service rather than a substitute for medical or legal advice; confirm its current remit directly and seek appropriately qualified professionals for individual decisions.