Fundació Catalana d'ELA Miquel Valls

Support for people with ALS/MND and their families

Fundació Catalana d’ELA Miquel Valls describes itself as Catalonia’s only nonprofit dedicated to improving the quality of life of people affected by ALS/MND and their families. Its work includes direct support, research, public awareness, and volunteer programs.

Services and programs

• In-home support for people with ALS.
• Care through specialized ALS units.
• Telemedicine.
• ALS research.
• Public awareness and information.
• Volunteer programs.
• Banc de Productes de Suport: A lending bank of equipment, including lifts and beds. The foundation reports adding 13 lifts and 11 beds through its “Llits i grues per a les persones afectades d’ELA” campaign and 12 more lifts through Swim for ELA.

Awards and institutional support

The foundation has received the Creu de Sant Jordi and the Medalla Josep Trueta al mèrit sanitari. Dipsalut, the public health organization of Girona Provincial Council, has also awarded it a grant for occupational therapy services for people with ALS and their families.

Advocacy and recent activity

The foundation continues to advocate for people affected by ALS and engage with public institutions. A delegation from the Partit Popular visited its headquarters to hear about their circumstances, and Spain’s Congress approved a reform removing the incompatibility between assistance and benefits related to the ALS Law. The foundation also runs a Christmas charity lottery in support of ALS, number 11873.

Locations

Main office: Av. del Turisme s/n, Local, at the corner of Carrer Santiago Rusiñol, 08370 Calella, Barcelona. It also has offices at Hotel d’Entitats de Gràcia, Carrer Providència, 42, 08024 Barcelona, and Hotel d’Entitats de Girona, La Rutlla, 22, 17002 Girona. Visits to the branch offices are by appointment.

Contact

Phone: 93 766 59 69. Email: ela@fundaciomiquelvalls.org. Phone hours are Monday through Friday, 8 a.m. to 3 p.m.