ACMAH - Associació Catalana de Malaltia de Huntington

Huntington’s disease support in Catalonia

ACMAH is a nonprofit organization serving people with Huntington’s disease and their families across Catalonia. Established in 1998, it has more than 25 years of experience. Its goal is to improve quality of life through programs, services, therapy, training, and information.

Services and activities

The association organizes its work around a comprehensive support program and a professional team. Services include:

• Guidance and support for people affected and their families.
• Emotional support for individuals, families, and caregivers.
• Rehabilitation activities and therapies, including clinical neuropsychology, speech therapy, and physical therapy.
• Social work and legal guidance.
• Ongoing information about the disease for people affected, families, professionals, students, and the public.
• Support for scientific research on Huntington’s disease.
• Public education and awareness activities.
• Representation and advocacy with government agencies and institutions.

Professional conferences

ACMAH regularly organizes professional conferences on Huntington’s disease. Its website lists the 19th, 20th, and 21st editions.

Leadership and staff

The board is led by president Montserrat Comas Mañosa, with Benjamin Megias Cantillo as vice president, Joaquin Bielsa Esteban as secretary, and Sandra Megias Barbero as treasurer. The professional team includes project and resource-management staff, a clinical neuropsychologist, a speech therapist, a physical therapist, and a social worker. A lawyer also serves on the volunteer team.

Location and contact

Office: Hotel d'Entitats La Pau, 1 Carrer de Pere Vergés, 7th floor, Office 1, 08020 Barcelona. Phone: 933 145 657. Email: acmah@acmah.org.